There is a great article in the New York Times that starts by stating: For many people, social networks are a place for idle chatter about what they made for dinner or sharing cute pictures of their pets. But for people living with chronic diseases or disabilities, they play a more vital role.
Their article refers to recent research by the Pew Internet and American Life Project and the California HealthCare Foundation. Several people have sent me this research including my insightful colleague @SocMediaRckStr.
The report states “People fighting chronic illnesses are less likely than others to have Internet access, but once online they are more likely to blog or participate in online discussions about health problems.
“People living with chronic disease who go online are finding resources that are more useful than the rest of the population,” said Susannah Fox, associate director of digital strategy at Pew and author of the report. Not surprisingly, according to Pew, Internet users with chronic illnesses are more likely than healthy people to use the Web to look for information on specific diseases, drugs, health insurance, alternative or experimental treatments and depression, anxiety or stress.
The New Times article claims that for the chronically ill, the social aspects of the Web take on heightened importance. Particularly if they are homebound, they also look to the Web for their social lives, discussing topics unrelated to their illnesses. Some schedule times to eat dinner or watch a movie while chatting online. Sites like HealthCentral, PatientsLikeMe, Inspire, CureTogether and Alliance Health Networks have become lifelines. Inspire alone has 156,979 members who have written 1,170,120 posts about the health issues that are important to them.
The numbers in the Pew Internet and American Life Projects are interesting. And if you read my blogs, pretty reflective of the social media strategy Anoroc helps our health care clients create. But sometimes numbers seem hollow when you really discover who is on the end of them. So there I was checking out these sites and being the hospice advocate and social media pusher I am, I searched ‘hospice’. That’s where I found a women I’ll call Meg. Meg is a hospice patient. Brave, honest, and loud about her journey. “Uh, Oh I am Dying Soon,’ She posts, “Every now and then it hits. It hit tonight, big time. I wanted to call someone, but who do you call to say something like that? Who would understand how this realization can just suddenly flood over me … all denial is gone and the raw truth is there.” But Meg received 93 replies to her post. Women like her in their caps, covering the effects of chemo, screaming out their support, their understanding and love through their keyboards. I like to believe that because of social media and sites like these, Meg’s desire to ‘call’ someone was answered.
“How could anyone stay depressed when she has this site and this “family” to step in whenever needed and say all the perfect things to get me past my pity party?! Surf Girl, I’ll work on that list! I just love all of you, and this is going to be a good day, as I enjoy each moment of it. No screaming today
I feel as though a group of best friends has come over to my house and held my hand – I feel good,” Love, Meg. And that, my friends is the real power of social media.